National Commission on Lymphatic Diseases
Description
The National Commission on Lymphatic Diseases (NCLD) was formed to advance the understanding of lymphatic diseases and help improve the health and care of people living with them. The members of the commission represent a wide cross-section of the lymphatics community – patients who have lymphatic diseases, clinicians who treat the diseases, and researchers who study them. The focus of their research is broad, encompassing basic and translational research, imaging, biomarker exploration, surgical and clinical research, and physical therapy. This diversity ensures a comprehensive approach to addressing the challenges associated with lymphatic diseases.
The NCLD is administered by the National Heart, Lung, and Blood Institute (NHLBI), which serves as the convening body to coordinate the commission’s work on behalf of the NIH. This commission is committed to transparency and inclusivity, actively engaging with diverse viewpoints, perspectives, and experiences from the community. Its meetings are open to the public, featuring presentations and discussions that highlight opportunities to accelerate scientific approaches to benefit patients and improve their care. The NCLD is a working group of the National Heart, Lung, and Blood Advisory Council (NHLBAC).
Committees
The NCLD members serving on the following committees work to define a vision for successful outcomes, along with a strategic approach that outlines an action framework for achieving their goals.
Scientific Advancement Committee
Educational Imperatives Committee
Measurable Results Committee
Patient Tools Committee
Third Party Coverage Committee
Community Growth Committee
Meetings and Materials
Roster
Stephanie Dreyer, M.B.A.
Patient Representative,
Vice Chair, Board of Directors,
The LAM Foundation
Cincinnati, OH
Stanley G. Rockson, M.D.
Allan and Tina Neill Professor of Lymphatic Research and Medicine
Director, Stanford Center for Lymphatic and Venous Disorders,
Chief of Consultative Cardiology,
Falk Cardiovascular Research Center
Stanford University School of Medicine
Stanford, CA
LE&RN Co-Founder
Selen Catania, Ph.D.
Program Officer, Vascular Biology and Hypertension Branch
Division of Cardiovascular Diseases
National Heart, Lung, and Blood Institute
Bethesda, MD
Cynthia Hudson
Patient Representative
Bronx, NY
Alexa Ercolano
Patient Representative/Advocate,
The Lymphie Life
Baltimore, MD
Rebecca Fisher, Ph.D.
Patient Representative
Director of Anatomy, ASU Health
Professor, School of Life Sciences
Arizona State University
Tempe, Arizona
Felicitie Daftuar, M.B.A.
Patient Representative
Founder, Lipedema Foundation
Greenwich, CT
Guillermo Oliver, Ph.D.
Director, Feinberg Cardiovascular & Renal Research Institute's Center for Vascular & Developmental Biology
Thomas D. Spies Professor of Lymphatic Metabolism,
Northwestern University
Feinberg School of Medicine
Chicago, IL
Jeffrey Iliff, Ph.D.
Associate Director for Research,
VISN 20 Mental Illness Research, Education, and Clinical Center,
VA Puget Sound Health Care System
Arthur J. and Marcella McCaffray Professor in Alzheimer’s Disease
Lead, UW Alzheimer’s Disease Research Center Research Education Component
Professor of Psychiatry and Behavioral Science
Professor of Neurology
University of Washington School of Medicine
Seattle, WA
Gwendalyn Randolph, Ph.D.
Emil R. Unanue Professor in Immunobiology
Department of Pathology & Immunology
Washington University School of Medicine
St. Louis, MO
Melissa B. Aldrich, Ph.D., M.B.A.
Associate Professor, IMM-Center for Molecular Imaging
The University of Texas Health Science Center at Houston
McGovern Medical School
Houston, TX
Paula Donahue, P.T., D.P.T, M.B.A., CLT-LANA
Associate Professor, Physical Medicine and Rehabilitation,
Vanderbilt Dayani Center Lymphedema Clinic
Vanderbilt University Medical Center
Nashville, TN
Hasina Outtz Reed, M.D., Ph.D.
Assistant Professor of Medicine,
James Hilton Manning and Emma Austin Manning Foundation
Research Scholar
Weill Cornell Medical College, Cornell University
New York, NY
Maxim Itkin, M.D.
Professor of Radiology, Hospital of the University of Pennsylvania
Director, Center for Lymphatic Imaging and Interventions
University of Pennsylvania Perelman School of Medicine
Hospital of the University of Pennsylvania
Philadelphia, PA
Timothy P. Padera, Ph.D.
Associate Professor of Radiation Oncology,
Harvard Medical School
Rullo Family MGH Research Scholar,
Edwin L. Steele Laboratories,
Department of Radiation Oncology
Massachusetts General Hospital
Boston, MA
Babak Mehrara, M.D.
Chief, Plastic and Reconstructive Surgery Service
Peter G. Cordeiro Endowed Chair, Department of Surgery
Memorial Sloan Kettering Cancer Center
Chappaqua, NY