9:00 a.m. – 12:00 p.m. ET
Description
The National Commission on Lymphatic Diseases (NCLD), a working group of the National Heart, Lung, and Blood Advisory Council (NHLBAC) established in 2023, is hosting a virtual Town Hall Forum to elevate the voices of individuals living with lymphatic diseases. This event serves as an inclusive and interactive platform to identify and discuss the gaps and barriers within the field.
NCLD members will engage with organizations that promote education, research, and advocacy for people with rare lymphatic diseases, as well as those directly affected by these conditions. Invited participants will share personal experiences, highlighting the challenges and obstacles they face in accessing effective healthcare and support. The forum aims to gather valuable insights, foster a sense of community, and propose collective actions toward shared goals, ultimately leading to the development of more effective strategies and resources to improve the health and care of people living with lymphatic diseases.
The public is welcome to attend virtually via the NIH VideoCast system at https://videocast.nih.gov/watch=55385.