NEWS & EVENTS

NHLBI Forum on Heart, Lung, and Sleep Disorders in American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) Youth

August 2 - 3 , 2016
NIH, Two Rockledge Center (Rockledge 2)
6701 Rockledge Drive, Room 9100/9104, Bethesda, MD 20892

Description

The goal of this forum is to bring together experts to identify knowledge gaps and research opportunities that can facilitate the prevention and future treatment interventions of HLS disease outcomes among AI/AN/NH youth. The forum will focus on modifiable risk factors that contribute to morbidity and mortality due to HLS diseases among this minority demographic. Evidence of epidemiological risk exists in older AI/AN/NH populations, but not the younger populations. AI/AN/NH children exhibit a poor health trajectory entering adulthood and these disease pathways remain unknown. The causes must be elucidated to provide the evidence base on which medicine and policy can “bend the curve”. The working group will provide a forum for discussion of research gaps and promising opportunities/recommendations for future research in AI/AN/NH youth.  Interventions and approaches for the prevention, diagnosis, and treatment of cardiovascular, pulmonary, and sleep disorders in AI/AN children and adolescents will be explored. Mechanisms and pathways of disease (e.g. genetics, gene-environment interactions) and targeted interventions will also be discussed.

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Agenda

8:00 - 8:15 am
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Registration

8:15 - 9:15 am
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Welcome, introductions, meeting overview

8:15 - 8:20 am, Welcome

TBD. National Heart, Lung, and Blood Institute

8:20 - 8:25 am, Opening Blessing

Tribal representative

8:25 - 8:45 am, Introductions

All

8:45 - 9:00 am, Opening remarks from NHLBI or DCVS Director

Gary Gibbons, MD or George Mensah, MD, FACC, National Heart, Lung, and Blood Institute

9:00 - 9:15 am, Workshop overview and goals

Barbara V. Howard, PhD (Chair), MedStar Health Research Institute and Georgetown U School of Medicine

9:15 - 10:45 am
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Session 1, Research in AI/AN/NH youth

9:15 - 9:35 am, Special considerations for conducting research with AI/AN/NH communities

Spero Manson, PhD, University of Colorado Denver

9:35 - 9:55 am, Ethics of research with AI/AN/NH communities and with youth

Deana Around Him, DrPH, National Congress of American Indians

9:55 - 10:15 am, Tribal perspective on research with AI/AN/NH communities

Michael Peercy, MPH, Department of Health, Chickasaw Nation

10:15 - 10:45 am, Group discussion

All

10:45 – 11:00 am
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Break

11:00 am – 12:30 pm
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Session 2, Studies of Sleep disorders

11:00 – 11:20 am, Sleep disorders in youth and future risk of obesity

Elizabeth Cespedes Feliciano, ScD, Kaiser Permanente (California)

11:20 – 11:40 am, Psychological stress and sleep

Martica Hall, PhD, University of Pittsburgh

11:40 – 12:00 pm, Biobehavioral sleep and cardiovascular/metabolic risk

Michael Grandner, PhD, University of Arizona

12:00 – 12:30 pm, Group discussion

All

12:30 – 1:45 pm
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Lunch

1:45 – 3:05 pm
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Session 3, Studies of Cardiovascular disease

1:45 – 2:05 pm, Dietary risk factors

Amanda Fretts, PhD, MPH, University of Washington

2:05 – 2:25 pm, Prevention of pediatric obesity in AI children

Alexandra Adams, MD, PhD, University of Wisconsin

2:25 – 2:45 pm, Cardiovascular Risk factors in AI youth

Jason Deen, MD, Seattle Children’s Hospital

2:45 – 3:05 pm, CVD risk in Western Alaska Native communities

Stacey Jolly, MD, Cleveland Clinic

3:05 – 3:20 pm
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Break

3:20 – 4:30 pm
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Session 3 continued, Cardiovascular disease

3:20 – 3:40 pm, Measures of preclinical cardiovascular disease in AI/AN/NH youth

Richard (Dick) Devereux, MD, Weill Cornell Medical College

3:40 – 4:00 pm, Environmental risk factors for CVD (well water contaminants)

Ana Navas-Acien, MD, PhD, Columbia University

4:00 – 4:30 pm, Group discussion

All

4:30 pm, Brief summary of today’s proceedings

Barbara V. Howard, PhD

4:45 p.m.
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Day 1 adjourns

Evening
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Group dinner

8:30 – 10:00 am
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Session 4 Research in Pulmonary disorders

8:30 – 8:50 am, Asthma care implementation program for youth

May Okihiro, MD, MS, University of Hawai’i at Mānoa

8:50 – 9:10 am, Community based asthma research in the Navajo Nation

Bruce G. Bender, PhD, National Jewish Health in Denver, CO

9:10 – 9:30 am, Indoor air quality interventions in AI communities

Annie Belcourt, PhD, University of Montana

9:30 – 10:00 am, Group discussion

All

10:00 – 10:15 am
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Break

10:15 am – 12:15 pm
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Session 5, Potential strategies for moving the field forward

10:15 – 10:35 am, Tribal Engagement in Research

Don Warne, MD, MPH, North Dakota State University

10:35 – 10:55 am, Training AI/AN/NH investigators/Conducting research in communities

Dedra Buchwald, MD, Washington State University

10:55 – 11:15 am, Stimulating science in AI/AN/NH communities

Denise Dillard, PhD, Southcentral Foundation

11:15 am – 12:15 pm, Three Breakout groups convene to develop plans

CVD, lung, and sleep

12:15 – 1:30 pm
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Working lunch
Group discussion about recommendations

1:30 – 2:55 pm
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Wrap-up, recommendations, plans for publication

1:30 – 2:30, Final recommendations from breakout groups

All

2:30 – 2:45, Plans for publication

All

2:45 – 2:55, Closing remarks

Barbara V.Howard, PhD

2:55 – 3:00 pm
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Acknowledgements

TBD

National Heart, Lung, and Blood Institute

3:00 – 3:05 pm
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Closing Blessing

Tribal representative

3:10 pm
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Meeting adjourns